Wednesday, February 25, 2009

Nicosan Research Study

Hey everyone,

I'm seriously trying to set up a study dealing with Nicosan. The question in my last post has me thinking that there are some unanswered questions. The think most of the skepticism does come from the fact that it's an African herbal remedy versus a Westernized one.

There isn't enough documentation and evidenced based research out there to support Nicosan from the medical perspective. I've gotten alot of questions that even I don't know the answers to, mainly because Nicosan is a medication that has worked for me....but I rarely know how it has been to everyone else.

So here is where you come in. Whoever has tried Nicosan, is on Nicosan and whoever is thinking of getting on it, please email me. I would like to send you a questionaire with just a few simple questions to check out your response. The results will be published anonymously, and the only person that will know the connection will be yours truly.

I can't be a research party of one. The more the merrier.

Email me at vixentales at gmail.

Tuesday, February 17, 2009

My Nicosan Story

Here is a question that I got from a reader on Nicosan that I would like to address:
A friend of mine just started on Nicosan 12/12/08, due to lapse in medical coverage and not having monthly blood exchanges, he has been having severe pain every week, resulting in 2-3 ER visits/month since 9/08. Since taking it, the severity and frequency has been reduced, but not as much as we had hoped, and the other day had unexpected major crisis that landed him in ER for 3 days!! 1st time in 2 months. It has worked some,but this was disheartening to both of us, and I know most people are new to Nicosan, but if anyone could post about their experiences, is it working, a lot, a little, not at all? Just so we have something to compare it to? Thanks and I wish all of you "takers" well!!
I will leave this up for everyone to respond to.

This seems to be a trend that I've noticed from emails from other users of Nicosan. I had a friend that started taking Nicosan in December as well, but still had a major crises a few weeks later. He dropped out of it and went back to Hydrea. I felt bad when this happened, but each person has to find the best combination of meds and treatment plan that works for them.

I would love to hear the story of anyone that has been on this medication, even if it was only for a few short weeks.

Personally, (and you can read this in my archives), I started taking Nicosan late April, right before I went on vacation to Hawaii. I took it all vacation long, came home in May, started a new job and fell sick a few days later (Stress, strep throat, pneumonia). I was intubated on the ventilator---so yeah, it was a hard crises. I almost lost my faith in Nicosan right then and there, thinking it was a waste of time and money--or another drug peddled as a 'cure'.

Norio pushed me to continue with it, telling me that Nicosan wasn't to blame for my crises. "The manufacturer states that you should take it continuously for 30-90 days before expecting it to work right? So keep taking it regulary until then!" He theorized that my body was worn down prior to that, and the trip to Hawaii, stress of dealing with family, vacation, school and the new job had all contributed to me wearing down my body. "Now you are starting with a clean slate, your blood levels are perfect, and you will take better care of yourself, and you'll give the drug a chance to work right."

His adamant belief (and constant nagging), made me continue on taking the medication. I marked the days off on my calendar religiously, deciding to write days that I had pain, to days that I had no pain at all. Three weeks later, I realized that I hadn't had pain since I was in the hospital. I thought it was maybe because I had a new transfusion, my lytes were good etc. so I waited for the 3 month mark, when my next crises would normally hit before I believed.

3 months later...still no crises. Best of all, no daily pain. But I've had stretches of 4-5 months with no crises, so maybe it's just a fluke.

I hit the 6 month mark before I became a full believer in Nicosan. And I haven't even taken it regularly (I hate pills!). I would say I take it about 3-4 times a week...yet I haven't been hospitalized once since that last crises in May. I haven't even been to the ER!

So now, we are at the 9 month mark...and counting. My pain pills lie unused in my cabinet, I haven't filled a prescription since last year---I haven't even visited my doctor.

On May 8th, 2009, it will be one year since my last crises.

That is my Nicosan story. Now I want to hear yours! Leave it in the comment section or just email me.

Monday, February 16, 2009

Checking in

Hey everyone,

How is it going? I've been busy, working alot at the same time trying to ace my Statistics class....grrrrr, I totally hate it! So far I'm hanging on to my A average by the skin of my teeth, but it's been a struggle, I've spent more time studying for this class than I have all the others combined; and we aren't even halfway through yet!

I'm planning a big trip this year to go visit my parents in Nigeria. The tentative date is in June/July so if anyone out there is in Nigeria, I would love to meet with you, have some Maltina and hear your stories. I'll be in Lagos for half the time, and might travel the other half of the time.

I just extended my work contract here in Cali, so I'll be enjoying the wonderful sun until June. It's so beautiful out here...but atrociously expensive. I wouldn't trade the weather for the crappy rain clouds of Portland, lol.

More to come

Thursday, February 5, 2009

I'm a Top 100 Health Blogger

Hi Vixen,

CONGRATULATIONS on your success in the People's Health Blogger Awards Competition. Your readers have spoken, and you’ve been chosen as one of the People’s Best 100 Health Bloggers!

The competition was a huge success, with hundreds of the best health bloggers competing and thousands of votes cast. The competition during the last few weeks was intense, but in the end, your blog was ranked as one of the Best 100. These awards are a recognition by your readers for the contribution you are making through your blog, so you should feel very proud of your achievement! As one of the People’s Best 100 Health Bloggers, your profile now appears on the People’s Health Blogger award page.

I even got a badge too!

People's HealthBlogger Awards

People's HealthBlogger Awards - Best 100 Winner!