Wednesday, April 15, 2009

Nicosan Woes

Hello everyone,

I've been digress in mentioning a few snags that have hit Nicosan. I've gotten several emails over the past few weeks that have alarmed me as well as sent me for more information. As many of you might know, Xechem USA filed for bankruptcy last year. Currently there is pending litigation about the dissolution of assets for the company with the shareholders and principal members. In addition to that Xechem Nigeria, the branch that actualy produces Nicosan lost their production license a few weeks ago.

Now what does that mean for you?

First of all, I have no idea. The key players that I've been talking to all have assured me that nothing is going to happen to Nicosan and that production will resume soon. There is still a stockpile of Nicosan in the market, and you are able to get some, but if production doesn't kick back in after a while, eventually this supply will dry up too. Remember, each bottle has an expiration date, so stockpiling any past the expiration date won't do much good.

Which really sucks for us the end user because just as soon as we find something that actually works and has personally changed my life, I feel like it's getting snatched away.

So what can we do to help?

Besides the fact that not everyone is super loaded with cash right now (economic crises, taxes etc), and does not have the millions that it would take to 1. get the formula 2. get it produced and distributed...we can still do something.

For starters, please send a prayer to your spiritual Deity to hook us all up. Not just with Nicosan, but with a solution to this tangible ailment. There are so many avenues for sickle cell research and possible cures, but something always seems to stand in the way. Pray that whatever or whoever is causing the roadblocks will have a change of heart, and seek to help instead of hinder the sickle cell cure pathway. Pray that there is enough Nicosan in the market and that production starts up soon.

If anyone has any ideas or suggestions, let me know. My email address is in the sidebar as usual.


Saturday, April 4, 2009

April Fools Joke..not cool

Hello darlings,

In the interest of full disclosure, I must state that I had pain this week. I actually had to call off of work on April 1st. The pains started as they normally did, twinges here and there, L1s, nothing major, and I ignored them, thinking it was a fluke and would just go away.

However it could not be denied and less than an hour later I was shivering under the blankets in L3 pain all over my body. I had to dig through several boxes to get to my pain medicine (it's been so long, I'd started misplacing them!). I took a Benadryl/Dilaudid mix, 2 Nicosan and some Motrin.

It was so wasn't the worst pain that I've ever had, but I haven't had pain in so long that I think I have totally forgotten how bad it could get and how to deal. I was shocked at first, and then rapidly unable to cope, crying and everything. So. Not. Pretty. It was so weird, almost surreal like it wasn't me in pain...after all, I was at 11 months pain free!


The good news is that once the pain meds kicked in (or maybe the Benadryl) I fell asleep and woke up hours later with localized pain in one leg only. That quickly dissipated throughout the course of the next day and by the 3rd I was right as rain, with only my track record tarnished. My body totally played an April Fools prank on me, breaking my 11 month pain free streak!

Looking on the bright side, it could have been alot worse. I could have been in the hospital in full blown crises mode getting pumped full of pints of blood and poked a bajillion times a day. Okay, that does put stuff in perspective. I've truly been blessed.

Hope everyone is enjoying this fine spring weather. And to those that have written in, I will be responding posthaste, I just have to wade through tons of correspondence at the moment.

Ciao everyone...hope you are all well.