Wednesday, August 15, 2007

Sex With Sickle Cell

I'm a very sexual person, so this has been one of the harder things to deal with about sickle cell. It sucks that when you are in the throes of a passionate encounter, you have a greater chance of getting and L2 or higher or even get thrown into a full blown out crises.

Here's the deal, with sex, your heart pumps blood faster through all the veins. Faster blood pumping means that any sickle cells that have been chilling in the corners somewhere causing no problems get flushed into the main bloodstream then smaller blood vessels and start to do their clogging up shit. Other factors include the fact that you are most probably hyperventilating during sex and this drops your oxygen saturation level making your body respond by pumping faster and faster. In addition, you are dehydrating via perspiration and cum so you need to hydrate before and after coitus.

I've had numerous exacerbations after sex. Sometimes even right in the middle, picture this, one minute you are having your orgasmic experience and the next minute are huddling under the covers, cold as fuck, joints hurting and pain coursing through your body like crazy. It's like going from 100 mph to 0 in less than 30 seconds. Can you imagine how your lover must be freaking out?

The best recourse is just to stop immediately, I know some people might argue to fight through the pain and just keep having sex...but check this fool, you're not the one in pain! So until you feel like a thousand jackhammers are crushing your bones mid-coitus, you have no right to try to talk me into 'keeping at it', 'finishing you off' or anything else. In fact, if you have any common decency you will try to alleviate my pain and distress and worry about your blue balls later.

Grrrr. Stupid people bug the hell out of me.

19 comments:

raecatherine said...

wow-- i work as an oncology nurse and have often taken care of sickle cell patients of all ages. in fact, some a few of them i know quite well by now. part of our admission history is sexuality--usually the pt comes in with a fair amount of pain, so this is a question that's often deferred, or just used a means let the patient know that you're open to talking about sexuality. I've never heard about this! But once I read what you wrote, it made so much sense...and oh my goodness, how much that must suck!

Real Life Drama Queen said...

That sucks Vixen. Good thing you have a good man. HUGS

Vixen said...

Lol...yeah, I don't usually have the mindset to think about sex when I'm sick...it's only when I'm well, lol.

DQ, dontcha know it!

Anonymous said...

I have sickle cell anemia and i can vouch for this. This is a big problem for me. Even masterbation will cause me for about 45 minutes to have the WORST crisis. After ejaculation it feels like the WORST crisis ever for about 45 minutes and I as well have been hospitalized after sex. Its not a suddle minor crises it feels like a hard hitting MAJOR crisis for about 45 minutes I cant wait to die and get this disease over with.

Anonymous said...

Wow I never knew that my sex life was causing some of my sickle cell pains but thanks to this I know now I looked into this because I had just had sex and like 30mins later went into one of the worst crisis in my life hurting all through my chest and rib cage....I mean I reeeeeaally like sex so I hope they hurry with a cure

Nutty Jennifer said...

So what do u advise...as in how can one have sex without fear of falling ill in between or after...

Anonymous said...

Theres a guy i would love to date that has it too but im kinda scared to love him u know. I dont think i could stand to see him in pain.

Anonymous said...

I am at the start of a new relationship with a woman. I had no idea sex could be a problem because she has sickle cell anemia. Man I need more information. Yikes, I got to broach this subject with her....help, any ideas or recomendations....

Anonymous said...

I NOW UNDERSTAND WHY I HARD MY PREVIOUS CRISIS....IT WAS THE WORST I EVER HAD! 3 WEEKS OF NONESTOP PAIN.

Anonymous said...

I'm happy I came across this blog. I'm a 31wife n mother who has sickle cell. And I ve been finding hard to explain to my husband why even though I'm still very much attracted to him, the pain that I am already in not only makes it hard for me to even think about sex, but to want to even try. I never knew that sex could have been the reason why I would sometimes hyperventilate, cause my heart to race, and send me into a pain frenzy right as I'm climaxing. Now I moight be able to explain to him after reading this, that it really has nothing to do with my sexual attraction to him.

Anonymous said...

Oh God am a sickler too bt still a virgin bt seriously this has scared me to death, what if my man gets fade up of all that and decides to leave? Oh christ this sucks big time....

Anonymous said...

I don't get you people cos i have the disease and have never in my life had any crisis.
Frankly speaking am able to have sex better when am in pain.
Can someone explain it better. Anyway I'm SC genotype

Anonymous said...

Im a 21yr old girl nd still a virgin. In as much as i want 2 hv sex,the thought of being in a crisis during or after sex scares me.. Is there anythng that cn b done 2 prevent these crises during sexual intercourse or mayb even after sex??

Anonymous said...

I have sickle cell too.......and that is no joke that pain knock you off your feet after sex. It is worst than having one of my regular crisis.

Mime Thomas said...

Some people are different, that's the only thing I can say and my doctors have said the same thing. I live with constant pains everyday so I have to take daily medication. My boyfriend was the one that put it together that while we were engaged in sex during and afterwards I would get really sick. I didn't want to believe it so we went to my doctor and they said it can cause severe pains because of your blood flowing while being excited and so forth.

Anonymous said...

i was screaming out loud.. when i suddenly fell into crisis "get me rid of this fucking pain or kill me motherfuckers"
that night i've masturbated like 2 times and woke up at 6 and fucked up

Anonymous said...

I'm a sickler too nd it sucks whenever you have sex there is no escaping the pain. Buh taking a painkiller such as tramadol has been helpful a lot to me before nd after sex or masturbation.

Oladipupo foundation for sickle cell,(NGO) said...

This s a prevalent situation n varies in individuals bt generally,taken enough water before,during and after sex will do a great deal n if u live with fluid intake as a rule,havin enough fluid in your body b4 each intercourse,u ar better off

Unknown said...

Dude this sickness suck..why does it have to be me... funny thing is it also kills you...