Friday, December 12, 2008

New Adult SCD Study

The Adult Sickle Cell Quality of Life Measurement Information System
(ASCQ-Me) Project is creating a tool to help doctors and researchers
across the U.S. better understand what it's like for adults living
with sickle cell disease.

By understanding how sickle cell affects a person's daily life –
like how it affects sleeping, eating, being able to move around,
emotions and feelings, and the way people spend time with family and
friends – researchers can better determine the real effects of
different treatments and doctors may be better able to provide
high-quality care.

We want to find out what it's like to live with sickle cell disease
from the people who know best. We are seeking adults with sickle cell
disease to take the draft questionnaire.

All of the research is confidential and voluntary, and all participants
will receive $80 as thanks. If you live in the Baltimore/Washington area
and are interested in the study, please call 410-455-1586 to get more
information and see if you are eligible.

This project is being funded by the National Heart, Lung, and Blood
Institute (NHLBI).

2 comments:

*Just my Luck* said...

i called today! i actually found out aboout it on facebook...im excited and glad that research is being done...

SCDFunding said...

There is a Sickle Cell Stress Study taking place too. if you can participate, please follow this link: http://livingwithsicklegenes.com/blogs/entry/SCD-Stress-Study

It is a telephone interview and you will be rewarded for your time.
Thanks for your help.